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“Wat hebben begeleiders van X nodig in de begeleiding van naasten van cliënten in de palliatieve zorgfase?” Een optimaliseringrapport in opdracht van stichting X
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Inhoud
- Samenvatting.......................................................................................................................................................................5
- Inleiding...............................................................................................................................................................................7
- Theoretisch kader..............................................................................................................................................................13
- Methode............................................................................................................................................................................18
- Resultaten..........................................................................................................................................................................28
- Conclusie & discussie.........................................................................................................................................................35
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2.1 Organisatie/ opdrachtgever..............................................................................................................................................7 2.2 Probleemstelling...............................................................................................................................................................8 2.3 Onderzoeksopdracht........................................................................................................................................................9 2.4 Doelgroep.......................................................................................................................................................................10 2.5 Doelstelling en onderzoeksvragen..................................................................................................................................11 2.6 Leeswijzer.......................................................................................................................................................................11
3.1 Samenwerken in de driehoek van cliënt, naasten en professional.................................................................................13 3.2 Gezamenlijke besluitvorming.........................................................................................................................................14 3.3 Omgaan met verlies........................................................................................................................................................15 3.4 Coping-strategieën.........................................................................................................................................................17 3.5 Empowerment................................................................................................................................................................18
4.1 Design.............................................................................................................................................................................19 4.2 Selectie ten behoeve van interviews..............................................................................................................................19 4.3 Meetinstrumenten.........................................................................................................................................................23 4.4 Procedure.......................................................................................................................................................................24 4.5 Analyse...........................................................................................................................................................................26
5.1 Vooronderzoek...............................................................................................................................................................28 5.2 Resultaten interviews.....................................................................................................................................................29
6.1 Palliatieve zorg voor mensen met een beperking versus palliatieve zorg in het algemeen............................................36 6.2 Verklaring van de belangrijkste bevindingen..................................................................................................................36 6.3 Discussie.........................................................................................................................................................................37 6.4 Aanbevelingen................................................................................................................................................................38 6.5 Praktische toepasbaarheid van het onderzoek...............................................................................................................39 3
- Literatuurlijst.....................................................................................................................................................................41
- Bijlagen..............................................................................................................................................................................45
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8.1 Begripsafbakening..........................................................................................................................................................45 8.2 Afkortingenlijst...............................................................................................................................................................47 8.3 Gebruikte materialen......................................................................................................................................................48 8.4 Analyseplan....................................................................................................................................................................67 8.5 Ethische verantwoording................................................................................................................................................85 4
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